Autism Prevalence, Challenges, and Supports: Understanding the Complexities of this Neurodevelopmental Disorder

Autism is a complex neurodevelopmental disorder that affects communication, social interaction, and behavior. It is estimated that 1 in 36 children in the U.S. is diagnosed with autism spectrum disorder (ASD), according to 2020 data reported by the CDC. Boys are four times more likely to be diagnosed with autism than girls.

Although autism can be reliably diagnosed as early as age 2, most children are still being diagnosed after age 4. This highlights the importance of early intervention, which has been shown to improve learning, communication, and social skills, as well as underlying brain development. Applied behavior analysis (ABA) and therapies based on its principles are the most researched and commonly used behavioral interventions for autism. Many children affected by autism also benefit from other interventions such as speech and occupational therapy.

While autism affects all ethnic and socioeconomic groups, minority groups tend to be diagnosed later and less often. This delay in diagnosis can affect access to appropriate interventions and supports. Therefore, it is essential to raise awareness and understanding of autism in all communities to ensure timely diagnosis and access to services.

The causes of autism are not fully understood, but research indicates that genetics are involved in the vast majority of cases. Children born to older parents are at a higher risk for having autism, and parents who have a child with ASD have a 2 to 18 percent chance of having a second child who is also affected. Studies have also shown that among identical twins, if one child has autism, the other will be affected about 36 to 95 percent of the time. In non-identical twins, if one child has autism, then the other is affected about 31 percent of the time.

Over the last two decades, extensive research has asked whether there is any link between childhood vaccinations and autism. The results of this research are clear: vaccines do not cause autism.

Autism can also be associated with a range of medical and mental health conditions. For instance, as many as one-third of people with autism have epilepsy, and more than half of children with autism have one or more chronic sleep problems. Anxiety disorders affect an estimated 11 to 40 percent of children and teens on the autism spectrum, and depression affects an estimated 7% of children and 26% of adults with autism.

Autism is also associated with challenges in daily function, such as developmental regression, where the child loses previously acquired skills, and wandering or bolting, which affects nearly half of those with autism. Nearly two-thirds of children with autism between the ages of 6 and 15 have been bullied, and nearly 28 percent of 8-year-olds with ASD have self-injurious behaviors such as head banging, arm biting, and skin scratching.

Caregivers and families of individuals with autism face significant challenges as well. On average, autism costs an estimated $60,000 a year through childhood, with the bulk of the costs in special services and lost wages related to increased demands on one or both parents. Mothers of children with ASD, who tend to serve as the child’s case manager and advocate, are less likely to work outside the home and earn significantly less than mothers of children with no health limitations or other disabilities.

In adulthood, many young adults with autism face significant challenges in finding employment and accessing healthcare transition services. More than half of young adults with autism remain unemployed and unenrolled in higher education in the two years after high school. Furthermore, the cost of caring for Americans with autism had reached $268 billion in 2015 and would rise to $461 billion by 2025 in the absence of more-effective interventions and support across the life span.

In conclusion, autism is a significant public health concern that affects many individuals and families.

A New Year’s resolution list can help caregivers make positive changes.

We either love them or avoid them, but no matter what our stance on New Year’s resolutions, there is something incredibly refreshing about stepping into a whole new year, providing us with a clean slate and the chance to make any modifications we want to improve total well-being or to accomplish a brand new goal or dream.

For family caregivers, New Year’s resolution lists tend to be particularly significant, mainly because they affect not merely the caregivers themselves, but their senior loved ones. It’s important, however, to keep resolutions sensible. Resolving, for instance, to get a full eight hours of sleep each night, while caring for a family member who has problems with sundowning issues in Alzheimer’s, could be setting yourself up for disappointment.

Try instead to think about one of the following resolutions especially developed with family caregivers in mind:

  1. I shall reach out for help and support, and take assistance when offered.
  2. I give myself permission to say “no” to requests to prevent dealing with more than I am able to handle.
  3. I will make my own health (both physical and mental) a priority, making sure that I set up and keep medical-related checkups and appointments.
  4. I will remind myself that self-care is not selfish, and that by taking good care of myself, I’m able to take better care of my loved one.
  5. I will take note of my energy level, and make a plan in order to avoid allowing myself to reach the point of exhaustion, burnout, or depression.

 

Starting with a no-cost in-home consultation, we will listen to the particular needs and challenges of your loved one, and develop a customized plan of care to fulfill those needs, through many different services such as:

  • Help with personal hygiene, dressing, ambulation and transfers
  • Running errands, such as buying groceries and picking up prescriptions
  • Accompanied transportation to medical appointments and enjoyable outings
  • Light housekeeping and laundry
  • Meal planning and preparation, according to any prescribed dietary plans
  • Engagement in conversations, reminiscing, games, and exercise, along with other pastimes that are of interest to the older adult
  • And many others
Caregiver in Abington MA: Senior Moving

Is it Time for Your Senior to Move? 

Your elderly family member may not be able to age in place for as long as she wants, no matter how stubborn she is about it. Asking some of these questions can help you both to determine if it’s time to consider moving now.

How’s Her Health?

If your elderly family member’s health is not doing as well as it was in the past, then moving may be necessary for her. Whether she moves in with family members or moves into an assisted living facility, she may need far more care than she can get by living in her own home. This may be one of the biggest factors involved in deciding whether it’s indeed time for your senior to change her residence.

Is She Safe?

The next most important thing to consider when your elderly family member is still aging in place is whether she’s safe where she is. If her safety is in question at all, then it’s time for you and her to talk about other options. She may have difficulty navigating from one floor to another, for instance, and that can be a huge factor in finding a single-story home for her.

Do You Need Her to Live with You?

For so many reasons, you may need your senior to live with you. There may be other obligations that require you to stay where you are and your senior has the space and safety with you that she needs. This isn’t a decision to take lightly, of course. If you’re not in a position to be able to move your senior in with you or she truly doesn’t want to live with you, you’re going to have to find another answer that does work for both of you.

Does She Want to Move?

If your elderly family member doesn’t want to move, there might not be a lot that you can do. Her immediate well-being and safety are under your control, but the last thing you want to do is to fight with her to make sure that she’s safe. You may have to talk to her about the logic involved in your suggestion to move, but ultimately she has to buy into the idea herself.

Aging in place may be possible with the help of home care providers and your devotion as a caregiver. But those two solutions may not be enough to overcome your senior’s environment.

 

If you or an aging loved one are considering hiring a Caregiver in Abington, MA, call the caring staff at Rivers of Hope today at 508-857-0629. Providing Independent, Dependent, and Companion Care Services in Brockton, Boston, Braintree, Avon Randolph, Abington, and the surrounding areas. riversofhopes.com